Research and Surveys

NAMI Minnesota requests your assistance in gathering information that will help our organization and our partners. Below is a list of current research studies and surveys and we encourage you to learn more about each one and participate in those that are a good fit for you.

Surveys

Survey on Children’s Mental Health System

NAMI Minnesota is collaborating with the Minnesota Association for Children’s Mental Health (MACMH) to gain input on the children’s mental health system from families and youth. This information will be used to improve the children’s mental health system. Your voice matters! Please take a few minutes to complete our survey. 

Apps Tested for Treating Teens with Psychosis, StarTribune 11-13-19, here.

Research Studies

Opportunity for People with Schizophrenia and Psychosis Conditions and Family/Caregivers to Help Support Clinical Research Participants
Are you interested in helping NAMI develop information and support resources for people participating in clinical research on schizophrenia and related psychosis conditions? If you have a diagnosis of schizophrenia, schizoaffective disorder, schizophreniform disorder, or brief psychotic disorder or are a family member/ caregiver of someone who does, we would appreciate hearing from you.

NAMI is working with a partner that is preparing to launch a clinical research study on the biology of schizophrenia and related psychosis conditions to learn more about how to identify and treat those conditions. We are looking for adults with a diagnosis and their adult family members/caregivers to answer an anonymous survey about their knowledge and perceptions of clinical research studies. Survey responses will be used to help NAMI develop the most helpful information and support resources possible for people participating in the upcoming clinical research study. If you’re interested in taking this survey, please use this link: https://www.surveymonkey.com/r/57DQHY2. (Posted 2-23-2021)

VIP family study (Neural Disconnection and Errant Visual Perception In Psychotic Psychopathology)
The University of Minnesota’s Dept. of Psychiatry is seeking mental health patients and their immediate family members to participate in Dr. Scott Sponheim’s VIP family study (Neural Disconnection and Errant Visual Perception In Psychotic Psychopathology) to understand thinking functions and visual perception. Participants must be between 18 and 65 years old, in good general physical health, no history of a central nervous system disorder/problem, and primary language must be English.

This study will focus on families in which at least one member is diagnosed with schizophrenia, schizoaffective disorder, or bipolar disorder. Participation involves spending 20 hours at the University of Minnesota answering mental health questions, cognitive assessments, a blood draw, and MRI scans. Days and times are arranged based on participants’ availability and a taxi can be provided if the participant does not have transportation. There will be compensation of $400 for full completion of all study procedures. For information, contact Yeliz at 612-625-7607 or cablab@umn.edu. Please add “VIP Study” in the subject line. (Posted 2-22-2021)

Understanding the Effects of the Pandemic on People Living with Mental Illnesses

The goal of this online survey is to understand the social and psychological effects of the COVID-19 pandemic on individuals with pre-existing mental health conditions. Respondents will be asked about personal mental health factors, such as diagnoses and treatments, as well as their thoughts, feelings, beliefs, and experiences during the pandemic.
Total participation time will range from 45 – 70 minutes. This survey allows respondents to select from a wide variety of mental health symptoms, conditions, etc. to best describe their mental health status. Participation time will vary greatly based on mental health history.

Participants may be eligible for this study if they are: Aged 18 or older; Diagnosed by a health care professional with a DSM-5 mental health condition; Able to provide informed consent. To view the consent form and participate in the study, please visit the study webpage. If you have questions or would like more information, please visit the study webpage or contact the researchers at dgooding@wisc.edu. (Posted 12-23-20)

Attention and Memory Skills Training Research Study

This focus of this study is to evaluate whether transcranial direct current stimulation (tDCS) improves attention and memory skills. We are interested in learning more about how well it works and who finds the training helpful. Participants complete attention and memory exercises on a computer while they receive tDCS or a comparison. TDCS is a safe, non-invasive procedure that applies mild electrical stimulation to the brain. Participants have an equal chance of being assigned to receive either tDCS or a comparison that mimics the procedure. After working on the computer, participants talk with an instructor about strategies to use attention and memory skills effectively in everyday life.

Training is offered 2-3 times a week. Each session lasts 2 hours. Participants complete 48 training sessions. In addition to the training sessions, there are 6 testing sessions that last 2-5 hours each. Testing sessions include: interviews, questionnaires, paper and pencil tasks, computer tasks, and demonstrations of everyday activities. Eligible individuals have a diagnosis of Schizophrenia or Schizoaffective Disorder, are between the ages of 18-60, are fluent in English, are not abusing substances, do not have a physical health condition that is incompatible with tDCS, are able to participate in a group activity, and do not have a history of brain injury or neurological condition that affects brain function.

All sessions are completed at the Minneapolis VA Health Care System. Participants are paid for each session. Participants who complete all sessions earn $1,245. To learn more, contact Tasha Nienow, PhD, LP at 612-629-7363. (Posted 12-11-2020)

Mental Health and Political Engagement
The goal of this study is to understand the relationship between mental health and political engagement. This study is an online survey with the potential for a follow-up interview. It will examine factors such as access barriers to activism, accommodations, and exclusion from political communities due to health-related experiences and identities. Participants will take an initial screener survey with a total participation time of 10-20 minutes. Participants may be contacted for a follow-up interview lasting 1-2 hours. Participants who complete the interview will be compensated $20. Approximately 50-100 individuals will complete the online screener survey, and 10-20 participants will be selected for follow-up interviews.

Participants may be eligible if they are: Aged 18 or older; Self-identified as having a mental health condition and/or other mental health factors (i.e., burnout) relevant to political life — all statuses and levels of ability welcome; Involved or interested in engaging in social justice activism — no activism experience necessary. Individuals identifying as Black or POC are highly encouraged to apply.

This initial screener survey is available online, with potential follow-up interview conducted by phone. If you have questions or would like more information, please visit the study webpage or contact the researchers at allisonreed@uchicago.edu. Join the Study Here: https://ssd.az1.qualtrics.com/jfe/form/SV_8BotZ0y8QBWcCYR. (Posted 11-30-2020)

Online Survey About Psychosis and Traumatic Experiences
This study is an anonymous online survey about psychosis and traumatic experiences. The goal of this study is to learn how traumatic events may contribute to developing psychosis, and how experiencing psychosis may cause trauma. The goal of this study is to increase our understanding of the relationship between psychosis and trauma by learning directly from the people who have these experiences. At the end of the anonymous survey, participants will have the option to provide their contact information. If contact information is provided, the researchers may contact participants for a follow-up telephone interview. Participants may receive compensation for completing the anonymous survey. Every tenth participant will receive a $50 digital gift card sent to an email address provided at the end of the survey.

Participants may be eligible for this study if they are: Aged 18 or older, and have experienced psychosis, with or without a formal diagnosis. There will be approximately 100 people participating in this study. If you have questions about research at NAMI, please visit NAMI.org/research or email research@nami.org. If you have questions or would like more information, please contact the researcher at ShannonPagdon@gmail.com. This study takes place online. To participate, please click here. (Posted 9-10-2020)

Anonymous Online Survey about Christian Faith and Mental Health
This study is an anonymous online survey about Christian faith and mental health. The researchers are interested in understanding the relationship between faith and mental health — how a person’s faith may affect the way they experience and understand symptoms of a mental health condition and seek support, and how experiencing a mental health condition may affect their faith and spiritual practices. The online survey should take approximately 20 minutes to complete. After completing the online survey, interested participants may be invited for a more in-depth interview with the researchers.

Participants may be eligible for this study if they: 1) Have had some affiliation with a Christian church or spiritual practice, and 2) Have experienced symptoms of a mental health condition. This study is being conducted online. Interested participants can access the survey at: http://hope.co1.qualtrics.com/jfe/form/SV_6M8EPzyAzd7WzQ1

If you have questions or would like more information, please refer to the participant consent information at the survey link. You can also contact the research team directly at finley@hope.edu. If you have questions about research at NAMI, please visit NAMI.org/research or email research@nami.org. (Posted 8-4-2020)

Infant Brain Imaging Study (IBIS): We’re looking for families who have an infant (0-6 months old) who has at least one older full-sibling diagnosed with autism. Expectant parents are encouraged to contact us. Our goal is to identify the symptoms of autism sooner. You will be asked to visit the UMN Twin Cities campus when your child is 6, 12, and 24 months old. All travel-related expenses for each study visit will be reimbursed. At each study visit, you can receive $170 in Target gift-cards to thank you for your participation. For additional information or to enroll, call the study coordinator at 612-624-4533. You can also email us at ibis@umn.edu. Visit the IBIS Network website for more information: www.ibis-network.org. (Posted 7-15-2o20)

Behavior and Sensory Experience Study (BASE): We are looking for children between 1 and 5 years of age diagnosed with any syndrome or disorder associated with developmental delays, such as Down syndrome, Tuberous sclerosis, fragile X syndrome, or fetal alcohol spectrum disorder, or with global developmental delay. The purpose of the study is to understand how early developmental experiences impact the development of behavior problems in young children with developmental delays by following kids and their families over an important developmental period. Video conference visits will take place twice per year, and take about 30-40 minutes each time. You would receive a $25 gift card for each home video visit that you complete. For more information about the study, please contact Adele Dimian, PhD at dimia006@umn.edu. (Posted 7-15-2o20)

Wiring Adolescents with Social Anxiety via Behavioral Interventions (WASABI): a closed-loop mobile intervention to reduce social anxiety and improve social skills
The University of Minnesota Department of Psychiatry and Behavioral Studies is recruiting adolescents (ages 14-18) who experience symptoms of social anxiety to participate in a remote study that evaluates two forms of digital Cognitive Behavioral Group Therapy (dCBGT) for social anxiety. Participants will engage in weekly 1-hour dCBGT sessions and will have questionnaires to complete throughout the week. Participation will last for 5 months, and participants may be compensated up to $255. Please contact the study coordinator at wasabi@umn.edu or 612-326-4228, or visit  https://sites.google.com/umn.edu/psychiatryresearch/home/anxiety/wasabi). (Posted 6-29-2020/added info 9-2-20)

Attention and Memory Skills Training Research Study
This focus of this study is to evaluate whether transcranial direct current stimulation (tDCS) improves attention and memory skills. We are interested in learning more about how well it works and who finds the training helpful. Participants complete attention and memory exercises on a computer while they receive tDCS or a comparison. TDCS is a safe, non-invasive procedure that applies mild electrical stimulation to the brain. Participants have an equal chance of being assigned to receive either tDCS or a comparison that mimics the procedure. After working on the computer, participants talk with an instructor about strategies to use attention and memory skills effectively in everyday life. Training is offered 2-3 times a week. Each session lasts 2 hours. Participants complete 48 training sessions. In addition to the training sessions, there are 6 testing sessions that last 2-5 hours each. Testing sessions include: interviews, questionnaires, paper and pencil tasks, computer tasks, and demonstrations of everyday activities.

Eligible individuals have a diagnosis of Schizophrenia or Schizoaffective Disorder, are between the ages of 18-60, are fluent in English, are not abusing substances, do not have a physical health condition that is incompatible with tDCS, are able to participate in a group activity, and do not have a history of brain injury or neurological condition that affects brain function. All sessions are completed at the Minneapolis VA Health Care System. Participants are paid for each session. Participants who complete all sessions earn $1,245. To learn more, contact Tasha Nienow, PhD, LP at 612-629-7363. (Posted 6-14-2020)

Voluntary Research Study for Young Adults in Early Psychosis Treatment Programs
This study is an assessment of an online education and support tool for people currently receiving treatment for early psychosis. Study participants will first meet virtually with the research team to provide informed consent and complete a brief survey. Individuals will then be given access to one of two online platforms – a portal with educational resources and videos, or an interactive “role-playing game” designed to build skills and support recovery. The goal of the study is to measure how effective the role-playing game is in supporting treatment engagement and participant empowerment in an online self-directed environment.

All engagement with the research team will be virtual. Participants will be asked to do a brief assessment after 2 months and again after 5 months, and will be paid for their participation. Participants may be eligible for this study if they:
– Are currently enrolled in an Early Psychosis treatment program in the United States.
– Are between the ages of 18 and 30
– Speak English
– Have a working email address and regular access to a computer, laptop or tablet with a webcam.

There will be 200 people participating in this study. This study takes place entirely online. Participants from anywhere in the U.S. are eligible. If you have questions or would like more information, please refer to the website (https://redcap.link/OTGstudyInfo). You may also contact the research team directly at reanne.rahim@nyspi.columbia.edu. (Posted 5-20-2020)

NIH Clinical Trials in Minnesota

There are hundreds of NIH Clinical Trials on Mental Health Disorders recruiting in Minnesota. Find out more here.

NIMH Videos

Discover NIMH Videos, here.